needsaresto
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Or the other title is "MS,the invisible bastard". So this thread Im gonna try walk you through one of my normal days.I want to introduce you to what it's like to have MS and also to unload my chest.
First off,there has been aton of media atention to Dr Zamboni's theory about vien restriction,mostly because he stood the medical world on it's ear by saying MS is not an autoimmune disease,but a problem of restricted viens whose job it is to get used blood out of our brains. These viens run down your neck,spine and chest. Ther drain used blood away and make room for fresh. Without proper drainage it's like anything else,the brain drowns. Only it's oxygen deprived blood anf full of iron. It ant get out,the iron falls out and deposits in the brain. The immune system thinks your under attack and assaults your own body,stripps the insulation (MYELIN) from your nerves. Then your nerves short out,cause strange muscle spasms,pain ,scarring,speech impediment,shaking, vertigo,muscle weakness,numbness in the limbs and extremeties and rarely death.Lesions form on your brain and spine. This is a plaque like substance and it is a sure sign of MS among other things. Neaurologists use them as a marker for the disease
His theory has proven to be truth. Over 2000 MS patients worldwide have had the angioplasty for removing these restrictions done and have recieved either a great deal of benefit or only some,depending on the severity and length they have had MS. After all,a dead cell is dead cell so any braincells killed off due to poor drainage will stay that way.
OK now you know what it is. So I'll start with this morning.
6 am; wide awake.My back is on fire,due to sleeping on it. I have many lesions down my spine and they can be swollen,givin great pain. I try to sleep on my side,but my bladder wont have it.So I get up,move slowly and carefully. My entire body is now racked with pain from my head to my toes.It feels like I am being electrocuted,but I make it to the bathroom. Brace one arm against the wall as my legs are wobbling now and my head has started to spin. and go. Urination is slow and sometimes painfull. MS can also cause bladder weakness. I deal with that every day and not a week goes by that I dont have to change my pants,know what I mean? Embarassing,but I just cant hold water.Also never seem to be done.Can go and then wash up,only to have to go right after washing up. Can be in the bathroom like this for 10 minutes until it settles down. I need to outwait this crap,or do my pants up and probably change them in 30 seconds or so. REALLY FRUSTRATING!
OK Im out of the bathroom,Lola our 4 month old puppy needs to get some relief herself,so I get my hunting jacket on,slip on my lined crocs and clip her leash on. I stagger ouside,Lol keeps her distance. She has been stepped on too much. It makes me feel awefull stepping on her but I cant help it. Poor leg coordination and the entire muscle group in the left leg is weak.
With a jolt she launches herself for the front yard.Needs to go now! My arms are yanked hard by this powerfull little dog and I have learned to always use 2 hands on her leash. One hand anchors the leash and the other I employ as a brake,so the jolt is subdued this time. She can really injure me if Im not carefull and alert.The left hand is the anchor,but muscle weakness has made it almost useless,so I loop the leash around my left wrist as there is just no grip there.
We get back inside. Th pain is phenominal now,but Lola needs breakfast. After that is done I run for my percocets,take two and my long acting oxy plus an anti depressant. Then I wrap myself in a warm fuzzy blanket on the couch,watch tv while Lola eats. I cant eat yet need to have the pain go away first. It will take 15-30 minutes before the pills work,but when they do I feel almost normal for 1./2 hour-45 minutes. Then they slowly ebb off.
45 minutes of tv and I feel good enough to walk over and make breakfast.
Nothing fancy,a bowl of frosted flakes is quick,easy and im too hungry to wait dammitt!
!/2 hour goes by.My spine and neck are uncomfortable so I lay on my side on the couch.
The wife is up,struggling with her head cold. Very sick this week. I have had double duty for a few weeks since she got sick. Im tired...2 hours after getting up and I need more sleep.
The kids are up now. Wife uses the puppy to get them out of bed,has the puppy lick thier toes. EWE GROSS! Giggles are coming from thier bedrooms.AAAHHH thank you GOD,for my children.Bless them and keep them from harm please. They are often the sunshine in my dreary day.
I will pause here. I need to take a rest...
First off,there has been aton of media atention to Dr Zamboni's theory about vien restriction,mostly because he stood the medical world on it's ear by saying MS is not an autoimmune disease,but a problem of restricted viens whose job it is to get used blood out of our brains. These viens run down your neck,spine and chest. Ther drain used blood away and make room for fresh. Without proper drainage it's like anything else,the brain drowns. Only it's oxygen deprived blood anf full of iron. It ant get out,the iron falls out and deposits in the brain. The immune system thinks your under attack and assaults your own body,stripps the insulation (MYELIN) from your nerves. Then your nerves short out,cause strange muscle spasms,pain ,scarring,speech impediment,shaking, vertigo,muscle weakness,numbness in the limbs and extremeties and rarely death.Lesions form on your brain and spine. This is a plaque like substance and it is a sure sign of MS among other things. Neaurologists use them as a marker for the disease
His theory has proven to be truth. Over 2000 MS patients worldwide have had the angioplasty for removing these restrictions done and have recieved either a great deal of benefit or only some,depending on the severity and length they have had MS. After all,a dead cell is dead cell so any braincells killed off due to poor drainage will stay that way.
OK now you know what it is. So I'll start with this morning.
6 am; wide awake.My back is on fire,due to sleeping on it. I have many lesions down my spine and they can be swollen,givin great pain. I try to sleep on my side,but my bladder wont have it.So I get up,move slowly and carefully. My entire body is now racked with pain from my head to my toes.It feels like I am being electrocuted,but I make it to the bathroom. Brace one arm against the wall as my legs are wobbling now and my head has started to spin. and go. Urination is slow and sometimes painfull. MS can also cause bladder weakness. I deal with that every day and not a week goes by that I dont have to change my pants,know what I mean? Embarassing,but I just cant hold water.Also never seem to be done.Can go and then wash up,only to have to go right after washing up. Can be in the bathroom like this for 10 minutes until it settles down. I need to outwait this crap,or do my pants up and probably change them in 30 seconds or so. REALLY FRUSTRATING!
OK Im out of the bathroom,Lola our 4 month old puppy needs to get some relief herself,so I get my hunting jacket on,slip on my lined crocs and clip her leash on. I stagger ouside,Lol keeps her distance. She has been stepped on too much. It makes me feel awefull stepping on her but I cant help it. Poor leg coordination and the entire muscle group in the left leg is weak.
With a jolt she launches herself for the front yard.Needs to go now! My arms are yanked hard by this powerfull little dog and I have learned to always use 2 hands on her leash. One hand anchors the leash and the other I employ as a brake,so the jolt is subdued this time. She can really injure me if Im not carefull and alert.The left hand is the anchor,but muscle weakness has made it almost useless,so I loop the leash around my left wrist as there is just no grip there.
We get back inside. Th pain is phenominal now,but Lola needs breakfast. After that is done I run for my percocets,take two and my long acting oxy plus an anti depressant. Then I wrap myself in a warm fuzzy blanket on the couch,watch tv while Lola eats. I cant eat yet need to have the pain go away first. It will take 15-30 minutes before the pills work,but when they do I feel almost normal for 1./2 hour-45 minutes. Then they slowly ebb off.
45 minutes of tv and I feel good enough to walk over and make breakfast.
Nothing fancy,a bowl of frosted flakes is quick,easy and im too hungry to wait dammitt!
!/2 hour goes by.My spine and neck are uncomfortable so I lay on my side on the couch.
The wife is up,struggling with her head cold. Very sick this week. I have had double duty for a few weeks since she got sick. Im tired...2 hours after getting up and I need more sleep.
The kids are up now. Wife uses the puppy to get them out of bed,has the puppy lick thier toes. EWE GROSS! Giggles are coming from thier bedrooms.AAAHHH thank you GOD,for my children.Bless them and keep them from harm please. They are often the sunshine in my dreary day.
I will pause here. I need to take a rest...
uker: Took my 2nd long acting oxy. Painis still here,like little electric jolts. Not enough to stop me,but annoying.The invisible bastard is hammering on my right ankle tonight.
