Vertigo

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I will definitely bring that up tomorrow. Thanks again
 
My wife has had it for about the last 10 years. Can't sleep in any position except on her right side. It comes out of nowhere, and sometimes lasts for a couple days. Been to the doctors to get crystals realigned or whatever they do, which helps. Never had a concussion or any head injury. I wish you the best, as this thing sucks.
 
Moparker,
I worked with a pipefitter/tig welder at Archers Daniels Midland that had these symptoms that made it very difficult to work in due to the climbing rigging and crazy position welds. He ended up having Oscillopsia. Check the spelling on that one. Karrin and I took the convert for a short ride Sunday...you know 8 blocks! LOL
 
Michael, it was good to talk to you last night. Far as I'm concerned, I met a new friend. If you need to talk some more, you have my number.
 
Back at ya Rob. Wish we weren't meeting over this horrible condition. I can't tell you how much I appreciate you reaching out to me about this.
 

I'm curious how this turned out for you.

I will try a walk today. It’s just very irritating. The bouncing of my view.

It has been about 16 months since the last post here.
I have had occasional dizziness when waking from overnight sleep, sitting up sometimes causes a spinning feeling and lack of balance.
Laying on my back while awake can trigger it too. It always goes away once I stand and get oriented. No problems once I'm upright, I can walk, run, drive, turn my head....I've had episodes like this a few times in the past few years and they usually go away after lasting about a week or so.
Oddly, if I'm laying face down, I feel normal. It is only while on my back. I've been working on my cars and when I'm laying under them looking up, the spinning comes on and takes a few moments to dissipate. I have had ear trouble since I was a kid so I suspect an infection.
I talked to a Doctor today. He says that this usually stops in it's own. He suggested Anti-Vert for Vertigo.
 
Ok. Sit down and pour a drink. Mine was never dizziness. Mine was more of a bouncing when there was motion. Either physical or environmental. When I would walk it was like I was on a dock. When I rode in a car the contours of the road or bumps did the same thing. I have what’s called 3PD. Persistent perceptual posterial dysfunction. Doctors for the most part are useless. I figured most of it out on my own. I found out on Reddit about the 3pd. I’m assuming you’re older like me. 57. Your problem is either the crystals in your inner ear are loose or it’s your neck or both. You need to go to a physical therapist that specializes in this and have what’s called the Epley maneuver. If that doesn’t work you need pt. I found a pt place that specializes in vertigo. They were great. My vestibular was attacked by a dormant virus. They think when I got Covid it woke it up. Your brain goes into a fight or flight mode. It shuts off information from the damaged part. Sometimes even after it heals it won’t recognize the information. Through my research I found people took an SSRI or antidepressant and it helped. That’s what turned me around. I take 50mg of Zoloft a day. It’s still there but, tolerable. A bad day is 80,85 percent back to normal. A good is 95 plus. It’s a motherfucker. I’ve had cancer and all kinds of other health issues. This has been the worst. If you would like to talk more pm me your number. More than happy to help.
 
neurological issues are really hard to diagnose. Unfortunately I’m an expert on this topic. Waited 4 months to get into the most knowledgeable doctor at Cleveland clinic and he was a turd. No help at all, cocky, basically an asshole.
 
Thank you for responding. I'm glad to read that you found something that worked for you.
 
Ask your doc about

Superior canal dehiscence syndrome.​

I have the exact symptoms you describe. A Doc in Pittsburgh diagnosed me.
 
Im 52 and I've had chronic tinnitus for the past 5 years and it has not let up not one bit ever so often I will get vertigo right now I'm dealing with my prostate starting to swell and causing me problems maybe it's all the chocolate I'm eating but I think my diet plays a major role in a lot of my health issues...Sorry bout your vertigo....it's no joke...prayers my friend!!! Valium does wonders....but makes you sleepy...really depressing though...brings on anxiety wish I had a cure....
 
Have had issues with this since 1998. Not a big problem other than kinda walking sideways (like I’ve had a few too many). And feeling like I am going to find off of my creeper under my car.
A year ago from last January I started having BAD episodes ( 2-3 times a month), for a little over a year. They were days from HELL . Violent nausea, could barely stand with a walking stick in each hand. Would lay down and 6-8 houses later it was better except the next day I was wasted. Nothing bad since February.
The earlier symptoms were dramatically cured by a specialist in about 10 minutes, having to do with the crystal’s in inner ear. Slowly symptoms came back.
Specialist Doctor after doctor after doctor, I canceled my last several appointments as we were not gaining anything. Still have some symptoms but not as bad as the days from hell.
Think I will just have to live with some of it. Hope some of you guys will have better luck.
Yote
 
Did you have surgery to cure it?
I did not have the surgery. The surgery requires removal of a section of the skull behind the ear, repairing the bone separating the ear canal from the brain cavity then replacing and securing the part of the skull removed for access. I felt the cure was not worth the extreme risk of the surgery. This all took place in 1985 or so. I worked hard at controlling my symptoms and avoiding trigger activities. The only thing that bothers the crap out of me is the pulse that is in my right ear 24/7. My ENT gave me a sound generator that hides under my pillow and plays various pitches to mask most of the pulse echoes so I can get to sleep. Sometimes this syndrome is very frustrating but I've been able to manage the past 40 years. When I am terrorizing the neighborhood in the Belvedere the sounds, pulses and dizziness is gone but I pay the price when it gets quite again. Loud noises are your enemy.
If the doctors can't find and fix your problem, I'm here to tell you to keep fighting and learn to control your symptoms.
 
I remember my dad saying he thought he had it. He tried to get back into fishing after years away from it and he said that just watching the current of the water pass, was enough to make him feel like he was going to pass out.
 
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